.Today brought heavy news after Will’s latest scans. The PET scan showed more than we had hoped for,
One Breath at a Time: The Quiet Bravery of Will’s Newest Battle
The rhythm of the pediatric ICU is one of high-tech hums and low-whispered prayers. For the family of young Will, that rhythm just became a bit more frantic.
After the “miracle” of his 194-minute heart surgery and the puzzling, necrotic “riddle” in his lungs, the latest medical reports have arrived—and they are heavy. A PET scan, designed to light up the shadows of the body’s internal war, has revealed more activity than anyone was prepared for. The fight has not just grown harder; it has expanded into new, uncharted territory.
The MRI and the Shadow on the Spine
The focus has now shifted from the heart and lungs to a new point of concern: Will’s back. For days, he has been navigating a nagging pain that wouldn’t subside. To the casual observer, it might look like post-operative discomfort, but to his medical team, it required immediate investigation.
An MRI is currently underway to answer the most terrifying question yet: Is the cancer affecting his spinal cord?
In the world of oncology, “spinal involvement” is a phrase that carries immense weight. It is the reason the atmosphere in the hallway has shifted from the “Zeus-like” defiance we saw earlier to a state of quiet, trembling faith. The results of this scan will dictate the next phase of his journey—whether it requires localized radiation, a change in systemic therapy, or a new surgical intervention.
Standing on Faith, Not Feet Alone
Despite the weight of the “heavy news,” Will continues to do what he does best: he defies the data.
While the PET scan shows a body under siege, the boy himself is doing anything but surrendering. In a move that has left his family and nurses in awe, Will is still walking, climbing, and laughing. There is a profound lesson in the way Will is handling this latest setback. He is not waiting for a “clear” scan to start living again. He is being “Will”—a child who finds joy in the climb and the laugh, even as the machines around him prepare for the next round of battle. He is a living reminder that while a diagnosis can occupy the body, it doesn’t have to conquer the spirit.
The Collective Prayer for a “Gentle Day”
As the family waits for the MRI results, they aren’t asking for a grand spectacle of victory today. They are asking for something much simpler: gentle days and clear answers.
The “impossible choices” of 5:00 AM have now evolved into the “one breath at a time” reality of mid-January. The family’s plea is a call for collective strength. They are afraid—honestly, humanly afraid—but they are standing on a foundation of faith that has been reinforced by every hurdle Will has already cleared.
Will isn’t just a “young warrior” because he is fighting a disease; he is a warrior because he refuses to let the fear of tomorrow steal the laughter of today.
The PET Scan Breakdown: What Happens Now?
While we wait for the MRI results, many are asking what the “activity” on the PET scan actually means for his long-term prognosis.
The full, heart-wrenching update—including the family’s raw reaction and the specific details of the spinal MRI—is pinned in the comments below. Please keep the light on for Will. 🙏🤍
Would you like me to draft a message of support for the family or a summary of how PET and MRI scans work together to find a path forward?
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